Content note: I should probably write this before — no, wait, after I finish this post — (Should Em dashes ideally appear as pairs? The brain fog force is strong in this one! Brain fogorce? Foghornorce? Fogotorçé?) — but I’m trying to just go with it, down the line, as it were, in my nonlinear mind-state. So, beware, I guess. Be aware. Always. But not hyper aware. (Why no hyphen? Why?!) All things considered, I’ll probably use a swear word or two; whinge about my life with lupus and friends; possibly make mention of my September-grief connection; and reference mental illness and suicide, but not really get into it, because I’m a coward, which isn’t fair, I know, but I said it and there it is.
I’m having trouble finishing a thought.
Whatshisface is in spellcheck but not whatsherface or whatstheirface. Spellcheck is officially behind the times! Both truly unrelated and strangely connected, schizzinosamente is Italian for finically, the adverbial form of finicky. Schizzinosamente … wow!
Also, wow: I believe we have adopted the real-life, American-Aussie puppy version of Bitzer the sheepdog from Shaun the Sheep! Minus the hat. And the wristwatch.
“I’m grateful I don’t have any human children to disappoint right now, just this goofy puppy,” is probably not the best way to express my gratitude for having 3-month-old Roo galumphing* around the house and crawling under the bed I just can’t quite get out of today.
The scene I can’t stop playing in my head: The man sat still, huddled next to his wife, clutching his newborn child, on the verge of surrendering to his need to acknowledge the utter devastation they three had just barely survived in great, wet sobs, while the reporter relayed their harrowing ordeal of losing everything but their lives to the hurricane. Then the reporter asked the man, “How do you stay positive after all this?” The man looked into his child’s face and tears escaped his hold. A portrait of love and penetrating loss. “What the fuck is wrong with you?” I yelled at the reporter. At the television, that is. I have mixed feelings about the media.
Toxic positivity. Sounds like an oxymoron. I hate it. And yet … I’m experiencing the irony of wanting to get through this exacerbation or flare of autoimmune disease activity (flare for short, although I’m seeing flair more and more in this context lately, which is hilarious to me**), so that I can fully appreciate and finish reading the post by chronically ill writer, activist, and icon Brianne Benness, titled, “The Myth of Getting Better.” How long will this flare go on? Will I still have a left eyebrow when it’s over? I have a mosquito bite over my right eyebrow and one between the two. There should be a rule prohibiting assaults to the face. Not the face! Not–The–Faaaaccce!!
Who decided kiwi fruit pairs best with strawberries? Do strawberries grow well in New Zealand? When I was a kid, we tried to tame wild Cascade/Mt. Rainier strawberries, but life at sea level didn’t quite agree with them. I totally relate. We had better luck with the regular kind. And it’s Euro-American buddy, rhubarb. Etymology of rhubarb hints at ancient (long-standing) belief that plant has medicinal, anti-rheumatic properties. There is evidence supporting that belief. And the nutrient combo in strawberries can relieve gout. I’m not saying a slice of strawberry-rhubarb pie is an anti-rheumatic treatment that could and maybe should be prescribed for the likes of one Underlying Conditions Lady, to be ingested, say, once a week, but … If people can sue hospitals to force the administration of a de-wormer for their loved ones in ICU ailing with a deadly virus, against medical advice and all available evidence, then I’d like to have my next mobility aid prescribed and fully covered by insurance without any hassle whatsoever, thank you very much!
Strawberries grow in cute little leafy plants connected by runners. Raspberries and blackberries grow in brambles. Thorny, overgrown, fruit-bearing brambles might be a good metaphor for our modern American, medical-insurance system, scheme-thingy. Complex complex. There’s no way to get to most of the fruit without getting hurt. The more you need, the more tangled, difficult, and painful the journey. You may get lost along the way. Sooner or later, there will be blood. It’s both compelling and repulsive. You just can’t stay away. Neither can those around you. It provides in numerous ways for many more living beings than are casually noticed. It is a natural barrier to some and a home to others. Occasionally, though all conditions portend a generous harvest, the pickings are rather slim and the only explanation is that it’s all behaving rather schizzinosamente. The easily accessible benefits are not accessible or easy or beneficial for all takers nor as advertised. But they do look good. And you know, you can’t please all the people all the time. That usually means fucking over the disabled.
You know that cannabis-infused syrup*** made solely from agave, blueberries, and medical marijuana I bought a little while back? Well, get this; it tastes exactly like agave syrup infused with blueberries and weed! Amazeballs! It’s like taking a little lick of agave crushed together with a plump, ripe blueberry right off the hoof of the horse that stomped on the sweet combo while standing there, waiting for its stall to be mucked out. Allegedly.
In between throwing the box into the recycling and putting the frozen meal into the microwave, I entered a state of confusion about the nature of its contents; as in, Are those green beans? Cool! That’s how thick my brain fogotorçé is right now. (Okay, yes, I had to go back to the beginning to check the spelling of my made up word that I’m kinda proud of.)
I’m having trouble finishing more than thoughts.
Should I be proud? Isn’t pride a sin? Of the deadly variety, in fact. A gang of white girls from my junior high put the beatdown on my white ass in the parking lot of a record store because I was “conceited” and “didn’t know my place”. Allegedly. One of those I will never forget moments. Unless I do. I’m Jewish. With moderate asthma. And thick thighs. Raised by a divorced German woman, an African-American man, and another, older German. I’m not sure what disqualified me from cheerleading, being on the Honor Council, campaigning for my Latina friend in a scoliosis brace to be class VP, and dating a popular guy of a social class a couple-three tiers above mine and theirs, but I believe it was at least one of those things I could not change, if not a combo.
I don’t believe in sin. I don’t entirely understand the concept. I mean, I do and I don’t. I believe in disappointment. And being bad. My being a bad person. Not because I’ve done bad things. Because I am broken. Wrong. Down to my core. Not due to original sin. No, it’s a depression thing. Clinical Depression, both inherited and acquired. The mental illness that ultimately killed my mother. Trauma and alcoholism were contributing factors. And that last doctor of hers that I’m not supposed to talk about.
I am listening to Paradise Lost, the 2009 audiobook. I could never finish the print version …
Why is the declaration, “Your mother would be so proud of you!” meant to be comforting? Why is pride in oneself a sin against Divinity, but a desirable pain reliever if obtained by a parent’s ghost? Allegedly. My mother loved me. That was enough. I’d rather she’d been proud of herself. Better yet, if she could have loved herself. Would she have been proud if I had loved myself? If I do so now, I do it for me.
News of Michael K. Williams’ death (6 Sep 2021) hit me as hard as that of Chadwick Boseman (28 Aug 2020). September. Had to be September. Or as close as makes no difference. The death month. In Christian/Julian/commercial-enterprise-the-world-over calendar terms, that is. The month of my sister’s death. My mother’s. 9/11. Never forget! Just one day after World Suicide Prevention Day. The month of my aunt’s birthday. My mother’s sister. Hers was the death that broke my mother. For the last time. The month of the High Holidays, usually. Or at least New Years, Jewishtically speaking.
Happy New Year 5782 to all the Jews tuning in! No one else cares. At all. You’d think the nefarious cabal of Semites set on world domination that Henry Ford, et al., warned about would have insisted on putting the aforementioned solar calendar on the back burner in favor of a certain lunar almanac, but … not so much. And yes, the word cabal is etymologically rooted in the word Kabbalah. Oy ge– Wait. Scheiße! What is it? There’s Oy vey, short for Oy vey iz mir! and, Oy ge– WTF? What is it? ¡Mierda! Fogotorçé rocks my world! Wow, predictive text has already cached my word! Meanwhile, autocorrect is trying to keep it clean in alles las lenguas.
My husband of 34 years is pretty sick right now. Not as sick as he was yesterday or the day before that. I’m hoping he’s getting better — really, truly. We have lived together for 36 years; first 22 months in sin. Neither of us is up for playing with the puppy right now. Hat or no hat.
Yesterday, I came up with an excellent metaphor for perfectionism. It was so good I thought I would remember it, foggy flare-flair and all. So, I didn’t make note of it and now it’s gone, which feels oddly appropriate.
From what I can gather, there are about as many Native Americans living in the US right now as there are Jews. Supposedly, some indigenous peoples of the Americas buried dead fish with their seedling crops. Maybe still do. We did that, when I was a kid. We white females and Black male hoed and troweled in fish heads and guts with the baby collards and beets and rhubarb. Death and rebirth. My mother’s happiest time was probably her 8 years on the Navajo reservation.
Roo is very possibly the happiest puppy to ever galumph across the face of the earth! He is perfectly imperfect, odd, and wonderful. I am thankful. I am in love. I may be feeling some pride.
Oy gevalt! That’s it!
I want pie.
*Roo’s galumphing consists of gawky galloping, pouncing, attempted and occasionally successful leaping, and glorious slides and spills. Roo also enjoys playing with Dray while making strangely childlike noises and sleeping while growing at a nearly audible rate. And chewing trees! Well, a bit of everything, really, but twigs and branches are great, apparently. Tree bark is good, too. Oh, so good!
**One of my fave movie quotes to take out of context and use in reference to my disease flares is, “I don’t really like talking about my flair,” from Officespace, delivered by Jennifer Aniston’s beleaguered and minimally flair’d chain-restaurant server character. Does my flare have flair? Can my flair flare? The flair of my flare is … (I’ll stop now.)
***I know it’s for cooking. Relax, people! Here, just put a drop of this stuff on your tongue …