I posted this on December 7, 2022, according to WordPress, now JetPack. Except, only as a draft it seems. Then again two months later, with the Hello section added below. But that was just a draft, too?! Ahh!
My Blue Room by DÅL|é
Hello, DÅL|é !
Some time in the early months of year two of the pandemic (you know the one), I gave myself the gift of a lifetime membership to a photo editing and drawing app. I then decided to sign my artwork with a representation of my grandmother’s nickname for me when I was a kid, “Dolly.” (She was the only one who could get away with calling me that, so don’t even think about it!) My initials are DAL — A for Anna, after my German (other) grandmother, pronounced with schwas coming and going. I drew my new art signature first and discovered it has a tail. In written/typed form, the tail became an e. I added diacritics and a line for visual effect. And because one of my favorite artists, Salvador Dalí, would have approved. Thus, DÅL|é.
Maybe 18 months later, my photo artsy app rolled out a new feature, free for us lifers: DALL-E*, the user-friendly, AI-driven digital image generator. Having given it a test drive, I do not call it an art creator. Many of the images are indeed entertaining, some hilarious, some surreal … depending on the prompts of the user. Most images are astounding in their intricacies and precision! All are well done. Indeed, they are perfect. There are no happy accidents. No mysteries. No hidden agendas. No inconsistencies. No je ne sais quoi. So, no relation whatsoever to Dalí! Nor to DÅL|é!
That, my lovelies, the side by side development of DÅL|é and DALL-E, is a real-life coincidence, an example of convergent evolution of names for tangentially related things. Only significant connection is from my perspective.
OpenAI, please, don’t sue me!
*Just like WALL-E, but without all that soul! (Or Disneyfied fatphobia.) Or how most folks mispronounce Dalí (yeah, I said it); again, without all that soul! And mustache wax!
Yes, it's my birthday And I'll freak the fuck out if I want to
There is a grace period, a profound relief After telling the pros the depths of one’s despair And receiving sincere care, retaining agency It’s almost euphoric by contrast
Yet, it is brief, this grace period It does not bridge the gap From when the dosage was increased To when the drug takes effect
And so it is the Year of the Rabbit Good fortune for all but those of the long-eared sign Cultural appropriation the (in)sincerest form of flattery? Or just plain common?
No one asks me what I want Even now they think I like surprises Once arranged, I'm given my part to play I’ll do my job and not let my loved ones down
I should count among my loved ones Yes, yes, I should
She lived 60 years, 322 days, officially 321 days if you forgot 2004 was a leap year My mother outlived hers and the others Will I outlive her?
I am trying I am working on it I am always working on it I am so very, very tired
We had rabbits for 25 years Their pandemic hit here first 2019 was not a leap year I can not raise rabbits again
And all the death that followed And all that came before
We regret to inform you That the recipient of your birthday wishes May not be able to fulfill The “happy” aspect of your heartfelt missive
Imitation is the sincerest form of flattery that mediocrity can pay to greatness.
Oscar Wilde (obv!)
That last part has long been a challenge, but after 3 years of pandemic and being a burden, leaving the house is getting harder and harder!Here’s looking at you, kid!
Stuff I’ve collected during my long dark journey of the psyche these last many taciturn months. I will reveal some of my top secret adventures in due course. Meanwhile, some stuff …
That last line from Fight Club just feels ever so apropos!Safety is an illusion, too. So, sleep well!😁Replace raincoat with windbreaker. Better make it fireproof!
Late 2019 and into 2020 death seemed all around us and especially close by. Late 2021 into this year has been something of a sequel. Plus pandemic season 3. (Series 3 for you Brit types?) What to do?! Before, I’ve had things to do and energy with which to do them. But this time, I shut down. It’s not easy finding a new starter for a 59 year old model!
I have rhupus hands! Woohoo! When lupus affects the hands as does rheumatoid arthritis. (No, I did not buy this product.)At times I still can’t believe how much Nixon administration we retained through Reagan, Bush I, Bush II, Trump. Or more accurately, always there in the shadows, maneuvering, dealing, etc?What Kathy said was, “Bernalillo [burn-a-Leo] County Bureau of Elections” 😂 Sooo… is my voicemail transcription service racist, still unable to familiarize itself with the Spanish words of my county and my therapist’s office? Gotta say, “brownie OK honey fear of elections” is surreal comedy gold!
Much of the best parts of our fabulous state of New Mexico is ablaze this month of May. None of the fires are truly near us in Albuquerque, but I feel the devastation all the same.
My face will never be the same after repeated forays into the Danger ‘Sone! (Source: r/lupus)So, you’re saying that was not a healthy shade of green for Yoda? (Source: r/lupus)
When the going gets tough, the tough get going. Because it’s their time to shine, to get going, do their thing. Right there in the name. They’ve been waiting, the tough have. Laid in supplies. Got the proper tires, presumably. Meanwhile, the tender can just take a break — yes?!
March’s Worm Moon rising over the Sandia Mountains. Aka Sleepy Moon, Moon of the Winds, Chaste Moon, Windy Moon and in Southern Hemisphere, Harvest Moon, Corn Moon. Photo by Jeff Hartzer.
Let me explain. No, there is too much. Let me sum up.
Indigo Montoya in The Princess Bride
At the start, I had a plan. Strategy, if you will. But, then, this happened. And then that. Followed by another and another. That. Then that. And that. That and that and that and that and that and … and …
So, I had me a bit of a shutdown, I did. I retreated. I’m ok. Rebooting, in a sense. I am writing about it and will post in time. Here’s what else I have planned for 2022 and My Good Wolf:
Structure!
As in organizational structure of some kind. Working on a menu with categories (i.e.; Lupus, Dogs, Mental Health, Unpopular Opinions, etc) into which posts will be sorted.
More Posts
More of the same: smattering or so of poetry amidst essays and other prose musings by me and my born of pandemic alter-ego, Underlying Conditions Lady.
Art and Fiction
If I hereby promise to publish my new forays into digital art, will that be the motivation I need to work through my Stuff* so that I will, in fact, post said art? ‘Tis the dream! (😇🐮! And I’m promising stories, too!)
And …
Nope. Notgonnadoit. Just leave it right there. That’s already a lot, you know. Yes, but it’s what I really want. And now that I have successfully asked for and received help, it feels doable!❤️**
That’s the long and the short of it! (Roo at 6 months, Dray at 3.5 years)
*Thanks, predictive text, that word 💯 needs capitalization right here!
**{😇🐮}x2! Putting some self-love out there! On NYE while listening to celebratory gunfire, no less.
Roo at 6 months of age is both the most graceful and the goofiest of all the many dogs we’ve loved!
Content note: I should probably write this before — no, wait, after I finish this post — (Should Em dashes ideally appear as pairs? The brain fog force is strong in this one! Brain fogorce? Foghornorce? Fogotorçé?) — but I’m trying to just go with it, down the line, as it were, in my nonlinear mind-state. So, beware, I guess. Be aware. Always. But not hyper aware. (Why no hyphen? Why?!) All things considered, I’ll probably use a swear word or two; whinge about my life with lupus and friends; possibly make mention of my September-grief connection; and reference mental illness and suicide, but not really get into it, because I’m a coward, which isn’t fair, I know, but I said it and there it is.
I’m having trouble finishing a thought.
Whatshisface is in spellcheck but not whatsherface or whatstheirface. Spellcheck is officially behind the times! Both truly unrelated and strangely connected, schizzinosamente is Italian for finically, the adverbial form of finicky. Schizzinosamente … wow!
Also, wow: I believe we have adopted the real-life, American-Aussie puppy version of Bitzer the sheepdog from Shaun the Sheep! Minus the hat. And the wristwatch.
“I’m grateful I don’t have any human children to disappoint right now, just this goofy puppy,” is probably not the best way to express my gratitude for having 3-month-old Roo galumphing* around the house and crawling under the bed I just can’t quite get out of today.
The scene I can’t stop playing in my head: The man sat still, huddled next to his wife, clutching his newborn child, on the verge of surrendering to his need to acknowledge the utter devastation they three had just barely survived in great, wet sobs, while the reporter relayed their harrowing ordeal of losing everything but their lives to the hurricane. Then the reporter asked the man, “How do you stay positive after all this?” The man looked into his child’s face and tears escaped his hold. A portrait of love and penetrating loss. “What the fuck is wrong with you?” I yelled at the reporter. At the television, that is. I have mixed feelings about the media.
Toxic positivity. Sounds like an oxymoron. I hate it. And yet … I’m experiencing the irony of wanting to get through this exacerbation or flare of autoimmune disease activity (flare for short, although I’m seeing flair more and more in this context lately, which is hilarious to me**), so that I can fully appreciate and finish reading the post by chronically ill writer, activist, and icon Brianne Benness, titled, “The Myth of Getting Better.” How long will this flare go on? Will I still have a left eyebrow when it’s over? I have a mosquito bite over my right eyebrow and one between the two. There should be a rule prohibiting assaults to the face. Not the face! Not–The–Faaaaccce!!
Roo is an opportunist.
Who decided kiwi fruit pairs best with strawberries? Do strawberries grow well in New Zealand? When I was a kid, we tried to tame wild Cascade/Mt. Rainier strawberries, but life at sea level didn’t quite agree with them. I totally relate. We had better luck with the regular kind. And it’s Euro-American buddy, rhubarb. Etymology of rhubarb hints at ancient (long-standing) belief that plant has medicinal, anti-rheumatic properties. There is evidence supporting that belief. And the nutrient combo in strawberries can relieve gout. I’m not saying a slice of strawberry-rhubarb pie is an anti-rheumatic treatment that could and maybe should be prescribed for the likes of one Underlying Conditions Lady, to be ingested, say, once a week, but … If people can sue hospitals to force the administration of a de-wormer for their loved ones in ICU ailing with a deadly virus, against medical advice and all available evidence, then I’d like to have my next mobility aid prescribed and fully covered by insurance without any hassle whatsoever, thank you very much!
Strawberries grow in cute little leafy plants connected by runners. Raspberries and blackberries grow in brambles. Thorny, overgrown, fruit-bearing brambles might be a good metaphor for our modern American, medical-insurance system, scheme-thingy. Complex complex. There’s no way to get to most of the fruit without getting hurt. The more you need, the more tangled, difficult, and painful the journey. You may get lost along the way. Sooner or later, there will be blood. It’s both compelling and repulsive. You just can’t stay away. Neither can those around you. It provides in numerous ways for many more living beings than are casually noticed. It is a natural barrier to some and a home to others. Occasionally, though all conditions portend a generous harvest, the pickings are rather slim and the only explanation is that it’s all behaving rather schizzinosamente. The easily accessible benefits are not accessible or easy or beneficial for all takers nor as advertised. But they do look good. And you know, you can’t please all the people all the time. That usually means fucking over the disabled.
You know that cannabis-infused syrup*** made solely from agave, blueberries, and medical marijuana I bought a little while back? Well, get this; it tastes exactly like agave syrup infused with blueberries and weed! Amazeballs! It’s like taking a little lick of agave crushed together with a plump, ripe blueberry right off the hoof of the horse that stomped on the sweet combo while standing there, waiting for its stall to be mucked out. Allegedly.
In between throwing the box into the recycling and putting the frozen meal into the microwave, I entered a state of confusion about the nature of its contents; as in, Are those green beans? Cool! That’s how thick my brain fogotorçé is right now. (Okay, yes, I had to go back to the beginning to check the spelling of my made up word that I’m kinda proud of.)
I’m having trouble finishing more than thoughts.
Should I be proud? Isn’t pride a sin? Of the deadly variety, in fact. A gang of white girls from my junior high put the beatdown on my white ass in the parking lot of a record store because I was “conceited” and “didn’t know my place”. Allegedly. One of those I will never forget moments. Unless I do. I’m Jewish. With moderate asthma. And thick thighs. Raised by a divorced German woman, an African-American man, and another, older German. I’m not sure what disqualified me from cheerleading, being on the Honor Council, campaigning for my Latina friend in a scoliosis brace to be class VP, and dating a popular guy of a social class a couple-three tiers above mine and theirs, but I believe it was at least one of those things I could not change, if not a combo.
I don’t believe in sin. I don’t entirely understand the concept. I mean, I do and I don’t. I believe in disappointment. And being bad. My being a bad person. Not because I’ve done bad things. Because I am broken. Wrong. Down to my core. Not due to original sin. No, it’s a depression thing. Clinical Depression, both inherited and acquired. The mental illness that ultimately killed my mother. Trauma and alcoholism were contributing factors. And that last doctor of hers that I’m not supposed to talk about.
I am listening to Paradise Lost, the 2009 audiobook. I could never finish the print version …
The Casual Puppy
Why is the declaration, “Your mother would be so proud of you!” meant to be comforting? Why is pride in oneself a sin against Divinity, but a desirable pain reliever if obtained by a parent’s ghost? Allegedly. My mother loved me. That was enough. I’d rather she’d been proud of herself. Better yet, if she could have loved herself. Would she have been proud if I had loved myself? If I do so now, I do it for me.
News of Michael K. Williams’ death (6 Sep 2021) hit me as hard as that of Chadwick Boseman (28 Aug 2020). September. Had to be September. Or as close as makes no difference. The death month. In Christian/Julian/commercial-enterprise-the-world-over calendar terms, that is. The month of my sister’s death. My mother’s. 9/11. Never forget! Just one day after World Suicide Prevention Day. The month of my aunt’s birthday. My mother’s sister. Hers was the death that broke my mother. For the last time. The month of the High Holidays, usually. Or at least New Years, Jewishtically speaking.
Happy New Year 5782 to all the Jews tuning in! No one else cares. At all. You’d think the nefarious cabal of Semites set on world domination that Henry Ford, et al., warned about would have insisted on putting the aforementioned solar calendar on the back burner in favor of a certain lunar almanac, but … not so much. And yes, the word cabal is etymologically rooted in the word Kabbalah. Oy ge– Wait. Scheiße! What is it? There’s Oy vey, short for Oy vey iz mir! and, Oy ge– WTF? What is it? ¡Mierda! Fogotorçé rocks my world! Wow, predictive text has already cached my word! Meanwhile, autocorrect is trying to keep it clean in alles las lenguas.
My husband of 34 years is pretty sick right now. Not as sick as he was yesterday or the day before that. I’m hoping he’s getting better — really, truly. We have lived together for 36 years; first 22 months in sin. Neither of us is up for playing with the puppy right now. Hat or no hat.
Yesterday, I came up with an excellent metaphor for perfectionism. It was so good I thought I would remember it, foggy flare-flair and all. So, I didn’t make note of it and now it’s gone, which feels oddly appropriate.
From what I can gather, there are about as many Native Americans living in the US right now as there are Jews. Supposedly, some indigenous peoples of the Americas buried dead fish with their seedling crops. Maybe still do. We did that, when I was a kid. We white females and Black male hoed and troweled in fish heads and guts with the baby collards and beets and rhubarb. Death and rebirth. My mother’s happiest time was probably her 8 years on the Navajo reservation.
Roo is very possibly the happiest puppy to ever galumph across the face of the earth! He is perfectly imperfect, odd, and wonderful. I am thankful. I am in love. I may be feeling some pride.
Oy gevalt! That’s it!
I want pie.
Our boy Roo at 11 weeks of age
*Roo’s galumphing consists of gawky galloping, pouncing, attempted and occasionally successful leaping, and glorious slides and spills. Roo also enjoys playing with Dray while making strangely childlike noises and sleeping while growing at a nearly audible rate. And chewing trees! Well, a bit of everything, really, but twigs and branches are great, apparently. Tree bark is good, too. Oh, so good!
**One of my fave movie quotes to take out of context and use in reference to my disease flares is, “I don’t really like talking about my flair,” from Officespace, delivered by Jennifer Aniston’s beleaguered and minimally flair’d chain-restaurant server character. Does my flare have flair? Can my flair flare? The flair of my flare is … (I’ll stop now.)
***I know it’s for cooking. Relax, people! Here, just put a drop of this stuff on your tongue …