Hold the Mayo🚩🚩🚩🚩

Artistically altered photo of moon, clouds hanging low over New Mexican wetlands.Moon rising over waters at Bosque del Apache National Wildlife Refuge, one of my favorite places!

PROLOGUE:
While trying to stay afloat the summer heat waves, Doctor Rheumy #5 (number 6, if you count JustSeeANeurologist Guy) declared this here Lupine Lady an Anomaly of the Medical variety and referred Our Strangeness to the Mayo Clinic in Phoenix, Arizona. And I began composing the following. Eventually, the Good People of You Should Not Leave That Out in This Climate of All Places decided against our rendezvous. Nonetheless, change was afoot. (And is now a-neck!) Details on Turning the Corner coming soon, including Not a Miracle Healing by most standards, and Embracing Life after once again having a sudden sit-down with Death takes over a year, a ragtag village, fairy godmother’s wheelchair, and a very special dog named Draymond.


Z: Welcome to Better You Than Us!

A: Oh, hey — hello!

Z: How may we serve you? [Z hands menu to patron A]

A: Oh, um, okay. Yeah… [A speaks while perusing menu.] It’s just that I — Wow, you have that!? Sorry! I apologize. It’s just a really impressive menu! But, I think maybe an order was called in for me?

Z: No need for apologies! Everybody gets overwhelmed when they first step in here. They get confused. Grow lightheaded. Start crying. Faint. Or, some just get really angry. I am so glad you are not one of those angry ones. Uh … or are you?

A: No, not generally angry. Generation removed from free-floating rage. I’m more of a non-squeaky wheel type, trying in my Middle Ages to identify how and when to properly squeak.

Z: Excellent! My name is Zqwjj and I’ll be your waitstaff-helper-guide-person.

A: I’m Auuiy’o, person in need of wait-guidan— or, um, help. I need help. Obviously.

Z: All right! First things first. [Z checks electronic tablet.] We do have a third-party takeout order for you. Still needing insurance review and blood sacrifice, however.

A: ļæ¼Excuse me?!

Z: An Out of the Order (Nary) order of WhatIsWrongWithThisLadyPerson in a thick substrate of Gotta Be (Bloody) Rare was called in for you by Dr. TrulyGivesAShit.

A: I guess that’s what you call the pricey, intense, out-of-state, out-of-network, diagnostic work over— or, uh, workup, absent any and all guarantees for success?

Z: A week’s worth of poking, prodding, visualizing, repeating tests in all the ways, except this time with an air of self-righteousness and importance like you have never known and a very dry sense of … pretty much everything.

A: Surely, I’ll be granted the honor of paying for all that out of pocket, too — with my luck. While basking in the glory of the Sixth Circle of Hell!

Z: Oh … um …?! [Z worriedly checks tablet.] Says here your referral is to the Phoenix, Arizona clinic.

A: As I said, Sixth Circle; nicest one. You don’t offer a workup like that here, do you?

Z: Oh, no, no, no! However, we do cater the often long and soul-crushing waiting periods. You could start with our popular You Call That Accessible? cruditĆ©s with I’m So Confused I Could Cry! dipping sauces.

A: That sounds … interesting.

Z: Are you being patronizing? The kind of patronizing a patron is not meant to be?

A: Sorry! It’s just … I, uh … I’m just not that excited about the whole Rising from the Ashes and Haboobs intensive deal right now. Not like I was.

Z: Ah. So, hold the Mayo?!

A: Yes, please.

Z: Sweet! Never had the opportunity to say that before! Professionally, I mean. [Z checks tablet.] Hmm… I see you have a long history of trauma and depression, and a complex medical profile, multiple autoimmune diseases (one rare), neurodivergent, lack of family support — lack of family, really —

A: Meaning?

Z: The Mayo may well hold itself.

A: What?!

Z: Even though there’s considerable evidence associating trauma, particularly ACEs (adverse childhood events), with autoimmune diseases — plus the fact that (worsening) depression is understandably common among those with autoimmune diseases — Mayo gets freaked out, if you will, by ongoing depression in cases like yours.

A: Anomalous rheumatology cases?

Z: Uh huh. Sure.

A: Rheumatological and apparently related conditions that overwhelmingly affect women and are therefore historically understudied, narrowly defined, and the sufferers maligned?

Z: As you said, ā€œpaternalistic.ā€

ļæ¼A: Did I? So … in cases of confusing, inconsistent test results and findings, blame the witches, oops, women as hysterical/borderline/whatever? Definitely do not find fault with the limits of current medical understanding?

Z: You’ve been misjudged before.

A: Last month I was told I was an entire medical practice’s one and only red flag. 1 out of 675. My occasional need for one particular type of legal medication is a stain on their otherwise spotless reputation.

Z: Ouch.

A: Been their patient for 9 years.

Z: Ah. May I suggest our Stir the Pot starter? Good for breaking out of stagnation.

A: No. Thanks. Actually, I think I’m ready to order my main course of action, now that Mayo’s off the table.

Z: Never good to leave the Mayo out on the table. [Z readies tablet for A’s order.] Now, what would you like?

A: [A reads from menu] Okay, I’d like an order of General Improvement, please, with greater ease of movement, no vertigo, clarity of mind, more stamina, normal digestive functioning, and significant reduction in pain.

Z: Well, I like the confidence, but …

A: Oh! And, an Abatement of Fear. On the side. [A closes menu.]

Z: [Tablet beeps and clicks briefly in Z’s hands.] Ah, yes, there are some, shall we say, compatibility issues with your current condition and that ask. Unless you want to start tithing? [Z looks at A who shows disapproval in no uncertain terms.] That’ll be a NO. Well, I’m sorry to say you’ve confused our General Improvement offering with our Full Remission special. But, from what I see here, I think an unassuming portion of General Improvement is a very good choice for you at this time.

A: Okay. What comes with that?

Z: You get your choice of greater ease of movement, reduced vertigo, and sporadic clarity of mind — OR — increased stamina, normal digestive function with rare, epic failures for no discernible reasons, and dizziness, no vertigo. Instead of reduction in pain, both choices come with better pain management. Served on a panorama of changing seasons or layered with an ever-evolving sense of peace with a series of devastating losses.

A: I see. Well, they’re both tempting, but I’ll go with the ease of movement/clarity of mind option with better pain management, layered with sense of peace stuff. And may I still have a side of Abatement of Fear?

Z: Yes, great choice! What flavor of Fear Abatement would you like? Milquetoast? Vague? Distinct? BlackWoman? HolyShit? Psychopath?

A: Distinct, please.

Z: Very nice. Now, how about a starter? OurPieInTheSkyHighHopes are popular.

A: No, thank you. Had it. That mix of sticky, sweet promise followed by enduring, bitter emptiness does not agree with me at all!

Z: Oh. [Z consults tablet.] Oh, right! My apologies! Of course, … That starter is not recommended for persons with Lupus.

A: Yup. Makes sense.

Z: For the Chronically Lupine, especially when ordering from our limited optimism menus, Hope Slivers and Cloud Linings, we usually recommend our Relativity Disclaimer starter, served with a delightful Cliché Blocker salsa.

A: Tell me about that.

Z: Our Relativity Disclaimer enhances the idiosyncratic nature of your main course, in this case, General Improvement. It’s all about how you feel now and not next week or last year. It’s not about you compared to someone else or somebody else’s idea of you.

A: Should I take that personally?

Z: Absolutely! It’s a bespoke savory starter. The ClichĆ© Blocker salsa ranges from a mild, passive-aggressive, guess you mean well, to a hot, offensive, burn it all the fuck down. Medium is a spicy, assertive, be real or shut up.

A: Spicy, it is!

Z: Excellent! And for dessert? May I suggest a modest serving of our house specialty, Self-Acceptance, topped off with our renowned self-esteem boost, Is This Self-Love?

A: Oooh, I’ve always wanted to try that! But, I’ve heard it’s very rich.

Z: Oh, no, not really. You’ll be pleasantly surprised at how well Self-Acceptance complements General Improvement! Admittedly, Self-Acceptance can be difficult to digest, especially in combination with selections from our Stagnation and Decline menus. But for the disabled, especially the dynamically disabled like yourself, Self-Acceptance is often described as light and refreshing. Also fleeting, for many. You could probably indulge daily, if you wanted. Best part: Just save whatever you can’t finish for another time. It never goes bad.

A: Self-Acceptance never goes bad? No matter what?!

Z: Think about it.

A: What about the folks who claim it can have an enduring aftertaste?

Z: Consider the source.

A: Privileged, healthy, able-bodied people who perceive chronic illness and disability as threats to their worldview? Oh …

Z: So, that’s an unassuming order of General Improvement, with greater ease of movement, decreased vertigo, and sporadic clarity of mind, plus better pain management. For your side, a distinct Abatement of Fear. For starter, Relativity Disclaimer with spicy ClichĆ© Blocker. And for dessert, Self-Acceptance, with a self-esteem boost of Is This Self-Love? Anything else?

A: Hold the Mayo.

Z: Done. Expires 6 months after issued. If properly stored, that is. Just FYI.

A: Noted.

Z: So, proceed?

A: Yes, let’s move on. Thank you!

Z: My pleasure! And soon, yours, too!

Mayo Clinic logo with tag line, ā€œYou know where to go.ā€
Hey! Shouldn’t you tell me where? ā€˜Cause I don’t know!

Mind Too Full Thoughts with Deb Whatsherface

Content note: I should probably write this before — no, wait, after I finish this post — (Should Em dashes ideally appear as pairs? The brain fog force is strong in this one! Brain fogorce? Foghornorce? FogotorƧƩ?) — but I’m trying to just go with it, down the line, as it were, in my nonlinear mind-state. So, beware, I guess. Be aware. Always. But not hyper aware. (Why no hyphen? Why?!) All things considered, I’ll probably use a swear word or two; whinge about my life with lupus and friends; possibly make mention of my September-grief connection; and reference mental illness and suicide, but not really get into it, because I’m a coward, which isn’t fair, I know, but I said it and there it is.

I’m having trouble finishing a thought.

Whatshisface is in spellcheck but not whatsherface or whatstheirface. Spellcheck is officially behind the times! Both truly unrelated and strangely connected, schizzinosamente is Italian for finically, the adverbial form of finicky. Schizzinosamente … wow!

Also, wow: I believe we have adopted the real-life, American-Aussie puppy version of Bitzer the sheepdog from Shaun the Sheep! Minus the hat. And the wristwatch.

ā€œI’m grateful I don’t have any human children to disappoint right now, just this goofy puppy,ā€ is probably not the best way to express my gratitude for having 3-month-old Roo galumphing* around the house and crawling under the bed I just can’t quite get out of today.

The scene I can’t stop playing in my head: The man sat still, huddled next to his wife, clutching his newborn child, on the verge of surrendering to his need to acknowledge the utter devastation they three had just barely survived in great, wet sobs, while the reporter relayed their harrowing ordeal of losing everything but their lives to the hurricane. Then the reporter asked the man, ā€œHow do you stay positive after all this?ā€ The man looked into his child’s face and tears escaped his hold. A portrait of love and penetrating loss. ā€œWhat the fuck is wrong with you?ā€ I yelled at the reporter. At the television, that is. I have mixed feelings about the media.

Toxic positivity. Sounds like an oxymoron. I hate it. And yet … I’m experiencing the irony of wanting to get through this exacerbation or flare of autoimmune disease activity (flare for short, although I’m seeing flair more and more in this context lately, which is hilarious to me**), so that I can fully appreciate and finish reading the post by chronically ill writer, activist, and icon Brianne Benness, titled, ā€œThe Myth of Getting Better.ā€ How long will this flare go on? Will I still have a left eyebrow when it’s over? I have a mosquito bite over my right eyebrow and one between the two. There should be a rule prohibiting assaults to the face. Not the face! Not–The–Faaaaccce!!

Black and white young puppy sits atop folded clothes in a drawer on the floor.
Roo is an opportunist.

Who decided kiwi fruit pairs best with strawberries? Do strawberries grow well in New Zealand? When I was a kid, we tried to tame wild Cascade/Mt. Rainier strawberries, but life at sea level didn’t quite agree with them. I totally relate. We had better luck with the regular kind. And it’s Euro-American buddy, rhubarb. Etymology of rhubarb hints at ancient (long-standing) belief that plant has medicinal, anti-rheumatic properties. There is evidence supporting that belief. And the nutrient combo in strawberries can relieve gout. I’m not saying a slice of strawberry-rhubarb pie is an anti-rheumatic treatment that could and maybe should be prescribed for the likes of one Underlying Conditions Lady, to be ingested, say, once a week, but … If people can sue hospitals to force the administration of a de-wormer for their loved ones in ICU ailing with a deadly virus, against medical advice and all available evidence, then I’d like to have my next mobility aid prescribed and fully covered by insurance without any hassle whatsoever, thank you very much!

Strawberries grow in cute little leafy plants connected by runners. Raspberries and blackberries grow in brambles. Thorny, overgrown, fruit-bearing brambles might be a good metaphor for our modern American, medical-insurance system, scheme-thingy. Complex complex. There’s no way to get to most of the fruit without getting hurt. The more you need, the more tangled, difficult, and painful the journey. You may get lost along the way. Sooner or later, there will be blood. It’s both compelling and repulsive. You just can’t stay away. Neither can those around you. It provides in numerous ways for many more living beings than are casually noticed. It is a natural barrier to some and a home to others. Occasionally, though all conditions portend a generous harvest, the pickings are rather slim and the only explanation is that it’s all behaving rather schizzinosamente. The easily accessible benefits are not accessible or easy or beneficial for all takers nor as advertised. But they do look good. And you know, you can’t please all the people all the time. That usually means fucking over the disabled.

You know that cannabis-infused syrup*** made solely from agave, blueberries, and medical marijuana I bought a little while back? Well, get this; it tastes exactly like agave syrup infused with blueberries and weed! Amazeballs! It’s like taking a little lick of agave crushed together with a plump, ripe blueberry right off the hoof of the horse that stomped on the sweet combo while standing there, waiting for its stall to be mucked out. Allegedly.

In between throwing the box into the recycling and putting the frozen meal into the microwave, I entered a state of confusion about the nature of its contents; as in, Are those green beans? Cool! That’s how thick my brain fogotorƧƩ is right now. (Okay, yes, I had to go back to the beginning to check the spelling of my made up word that I’m kinda proud of.)

I’m having trouble finishing more than thoughts.

Should I be proud? Isn’t pride a sin? Of the deadly variety, in fact. A gang of white girls from my junior high put the beatdown on my white ass in the parking lot of a record store because I was ā€œconceitedā€ and ā€œdidn’t know my placeā€. Allegedly. One of those I will never forget moments. Unless I do. I’m Jewish. With moderate asthma. And thick thighs. Raised by a divorced German woman, an African-American man, and another, older German. I’m not sure what disqualified me from cheerleading, being on the Honor Council, campaigning for my Latina friend in a scoliosis brace to be class VP, and dating a popular guy of a social class a couple-three tiers above mine and theirs, but I believe it was at least one of those things I could not change, if not a combo.

I don’t believe in sin. I don’t entirely understand the concept. I mean, I do and I don’t. I believe in disappointment. And being bad. My being a bad person. Not because I’ve done bad things. Because I am broken. Wrong. Down to my core. Not due to original sin. No, it’s a depression thing. Clinical Depression, both inherited and acquired. The mental illness that ultimately killed my mother. Trauma and alcoholism were contributing factors. And that last doctor of hers that I’m not supposed to talk about.

I am listening to Paradise Lost, the 2009 audiobook. I could never finish the print version …

Black and white puppy lounges in recliner, its head cocked to one side, a paw on the chair’s arm
The Casual Puppy

Why is the declaration, ā€œYour mother would be so proud of you!ā€ meant to be comforting? Why is pride in oneself a sin against Divinity, but a desirable pain reliever if obtained by a parent’s ghost? Allegedly. My mother loved me. That was enough. I’d rather she’d been proud of herself. Better yet, if she could have loved herself. Would she have been proud if I had loved myself? If I do so now, I do it for me.

News of Michael K. Williams’ death (6 Sep 2021) hit me as hard as that of Chadwick Boseman (28 Aug 2020). September. Had to be September. Or as close as makes no difference. The death month. In Christian/Julian/commercial-enterprise-the-world-over calendar terms, that is. The month of my sister’s death. My mother’s. 9/11. Never forget! Just one day after World Suicide Prevention Day. The month of my aunt’s birthday. My mother’s sister. Hers was the death that broke my mother. For the last time. The month of the High Holidays, usually. Or at least New Years, Jewishtically speaking.

Happy New Year 5782 to all the Jews tuning in! No one else cares. At all. You’d think the nefarious cabal of Semites set on world domination that Henry Ford, et al., warned about would have insisted on putting the aforementioned solar calendar on the back burner in favor of a certain lunar almanac, but … not so much. And yes, the word cabal is etymologically rooted in the word Kabbalah. Oy ge– Wait. Scheiße! What is it? There’s Oy vey, short for Oy vey iz mir! and, Oy ge– WTF? What is it? Ā”Mierda! FogotorƧƩ rocks my world! Wow, predictive text has already cached my word! Meanwhile, autocorrect is trying to keep it clean in alles las lenguas.

My husband of 34 years is pretty sick right now. Not as sick as he was yesterday or the day before that. I’m hoping he’s getting better — really, truly. We have lived together for 36 years; first 22 months in sin. Neither of us is up for playing with the puppy right now. Hat or no hat.

Yesterday, I came up with an excellent metaphor for perfectionism. It was so good I thought I would remember it, foggy flare-flair and all. So, I didn’t make note of it and now it’s gone, which feels oddly appropriate.

From what I can gather, there are about as many Native Americans living in the US right now as there are Jews. Supposedly, some indigenous peoples of the Americas buried dead fish with their seedling crops. Maybe still do. We did that, when I was a kid. We white females and Black male hoed and troweled in fish heads and guts with the baby collards and beets and rhubarb. Death and rebirth. My mother’s happiest time was probably her 8 years on the Navajo reservation.

Roo is very possibly the happiest puppy to ever galumph across the face of the earth! He is perfectly imperfect, odd, and wonderful. I am thankful. I am in love. I may be feeling some pride.

Oy gevalt! That’s it!

I want pie.

Bust of black and white puppy with endearing expression on face
Our boy Roo at 11 weeks of age

*Roo’s galumphing consists of gawky galloping, pouncing, attempted and occasionally successful leaping, and glorious slides and spills. Roo also enjoys playing with Dray while making strangely childlike noises and sleeping while growing at a nearly audible rate. And chewing trees! Well, a bit of everything, really, but twigs and branches are great, apparently. Tree bark is good, too. Oh, so good!

**One of my fave movie quotes to take out of context and use in reference to my disease flares is, ā€œI don’t really like talking about my flair,ā€ from Officespace, delivered by Jennifer Aniston’s beleaguered and minimally flair’d chain-restaurant server character. Does my flare have flair? Can my flair flare? The flair of my flare is … (I’ll stop now.)

***I know it’s for cooking. Relax, people! Here, just put a drop of this stuff on your tongue …